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Bringing Up Down Syndrome

B.U.D.S. Resources

Alabama Services (click here)

Christian-DS-Parents
Description For parents of children with Down syndrome that are practicing Christians.
Owner northnr@aol.com
Subscribe Send e-mail: Christian-DS-Parents-subscribe@yahoogroups.com
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URL http://www.geocities.com/Heartland/pointe/6575/

Dads Appreciating Down Syndrome
Description Our mission is to assist and support, through fellowship and action, the fathers and families of people with Down syndrome.
Owner dadsds-owner@yahoogroups.com
Subscribe Send e-mail: dadsds-subscribe@yahoogroups.com
Post Send e-mail: dadsds@yahoogroups.com
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URL http://health.groups.yahoo.com/group/dadsds/
Website http://www.dadsappreciatingdownsyndrome.org/

Down's Syndrome Angels
Description Parents of Down's syndrome children and other special need children sharing advice, giving support, sharing milestones of our special angels.
Owner GlensMa@AOL.COM
URL http://groups.aol.com/angelswithdowns/

DownInMichigan
Description For parents of children with Down syndrome who reside in the state of Michigan. Learn from each other's experiences related to medical, insurance, PT, OT, IEP's, etc. Relatives and professionals are also welcomed to join the list.
Owner bethk_48750@yahoo.com
Subscribe Send e-mail: DownInMichigan-subscribe@yahoogroups.com
Post Send e-mail: DownInMichigan@yahoogroups.com
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URL http://groups.yahoo.com/group/DownInMichigan/

downsyndrome
Description A place where parents can get together to discuss all the issues related to Down syndrome. Here you can meet with other parents and learn what other parents are doing for their children with Down syndrome.
Owner kemp@triton.net
Subscribe Send e-mail: downsyndrome-subscribe@yahoogroups.com
Post Send e-mail: downsyndrome@yahoogroups.com
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DownSyndromeParents
Description This list is for parents who have children with Down syndrome and for those people who work with these exceptional children and adults. Support is provided and always welcome. There is also help and information on developing and creating a successful IEP for your school-aged child. If you need an advocate, contact us with your E-mail address, state, county or city and school district and we will try and match you with an advocate in your area or assist you over the Internet.
Owner Bjams3@aol.com
Subscribe Send e-mail: DownSyndromeParents-subscribe@yahoogroups.com
Post Send e-mail: DownSyndromeParents@yahoogroups.com
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URL http://health.groups.yahoo.com/group/DownSyndromeParents/

DOWN-SYN
Description Discussion list for Down Syndrome open to parents, siblings, friends, doctors, teachers and, of course, to people with Down Syndrome
Owner billm@iea.com or DOWN-SYN-request@listserv.nodak.edu
Subscribe Send e-mail: listserv@listserv.nodak.edu with text: SUB DOWN-SYN <full name>
Unsubscribe Send e-mail: listserv@listserv.nodak.edu with text: SIGNOFF DOWN-SYN
Digest Send e-mail: listserv@listserv.nodak.edu with text: SET DOWN-SYN DIG
No Digest Send e-mail: listserv@listserv.nodak.edu with text: SET DOWN-SYN NODIG
Disable Receipt of Mail Send e-mail: listserv@listserv.nodak.edu with text: SET DOWN-SYN NOMail
Re-enable Receipt of Mail Send e-mail: listserv@listserv.nodak.edu with text: SET DOWN-SYN Mail
Post Send e-mail: DOWN-SYN@LISTSERV.NODAK.EDU
Settings http://listserv.nodak.edu/scripts/wa.exe?SUBED1=down-syn&A=1
Archives
http://listserv.nodak.edu/archives/down-syn.html
ftp://LISTSERV.NODAK.EDU/F/PUBLIC/DOWN-SYN/
Newsgroups
news://bit.listserv.down-syn
news://news.avana.net/bit.listserv.down-syn

down_syndrome
Description For parents of children with Down syndrome to brag, talk about concerns, medical problems, schooling, therapy, etc.
Owner soonerangel@hotmail.com
Subscribe Send e-mail: down_syndrome-subscribe@yahoogroups.com
Post Send e-mail: down_syndrome@yahoogroups.com
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URL http://health.groups.yahoo.com/group/down_syndrome/

DSP4L
Description Down Syndrome Parents For Life. A pro-life list serve comprised of parents of Down syndrome children who are committed to eradicating the practice of aborting babies with Down syndrome. We will strive to provide information to parents to be who face this situation, provide counseling, and will work with parents to find loving homes for babies with Down syndrome when the birth parents cannot raise the child.
Owner marsilio@ptdprolog.net
Subscribe Send e-mail: DSP4L-subscribe@yahoogroups.com
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URL http://groups.yahoo.com/group/DSP4L/

DSTNI
Description For parents of children with Down syndrome (professionals welcome). This list is pro-TNI.
Owner dilela@i-55.com or DSTNI-owner@yahoogroups.com
Co-moderator Julie Romero
Subscribe Send e-mail: DSTNI-subscribe@yahoogroups.com
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URL http://groups.yahoo.com/group/DSTNI/

DS-AUTISM
Description The Down Syndrome & Autistic Spectrum (DS-AUTISM) listserv was created so families, parents, and professionals interested in this dual diagnosis could discuss issues related to medical, educational, and family concerns in a free, and open forum.
Owner jmedlen@qwest.net
Subscribe Send e-mail: DS-AUTISM-subscribe@yahoogroups.com
Post Send e-mail: DS-AUTISM@yahoogroups.com
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URL http://groups.yahoo.com/group/ds-autism/

DS-NUTRITION
Owner TheRagans@aol.com and marsilio@ptdprolog.net
Description Private mailing list available only to those parents who currently use NuTriVene-D® as a therapy for patients with Down syndrome.
Subscribe Send e-mail: ask@NUTRIVENE.COM
Unsubscribe Send e-mail: listserv@home.tbinet.org with text: SIGNOFF DS-NUTRITION
Post Send e-mail: DS-NUTRITION@LISTSERV.TBINET.ORG
Disable Receipt of Mail Send e-mail: listserv@home.tbinet.org with text: SET DS-NUTRITION NOMAIL
Re-enable Receipt of Mail Send e-mail: listserv@home.tbinet.org with text: SET DS-NUTRITION MAIL
Digest Send e-mail: listserv@home.tbinet.org with text: SET DS-NUTRITION DIGEST
No Digest Send e-mail: listserv@home.tbinet.org with text: SET DS-NUTRITION NODIGEST
Archives http://listserv.tbinet.org/archives/ds-nutrition.html
Join or leave the list (or change settings): http://listserv.tbinet.org/scripts/wa-tbinet.exe?SUBED1=ds-nutrition&A=1

DS_Teens_Plus
Description Dedicated to the parents, family members and friends of teens and "olders" born with Down syndrome.
Owner russeff@whidbey.com
Subscribe Send e-mail: DS_Teens_Plus-subscribe@yahoogroups.com
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URL http://groups.yahoo.com/group/DS_Teens_Plus/

Einstein-Syndrome
Owner Einstein-Syndrome-request@TBINET.ORG or miriam@SIGECOM.NET
Description A list for parents of children with Trisomy 21 who want to free their child from the negative expectations of what is commonly referred to as Down syndrome. Positive approaches to health, nutrition, disease prevention, education, therapies, social and spiritual training may be discussed. This includes, but is not limited to TNI, vitamin therapy, NACD, early intervention and schooling options. The list owner insists that all posts be kind and respectful.
Subscribe Send e-mail: listserv@tbinet.org with text: SUBSCRIBE EINSTEIN-SYNDROME
Unsubscribe Send e-mail: listserv@tbinet.org with text: SIGNOFF EINSTEIN-SYNDROME First Last [your first and last names]
Post Send e-mail: EINSTEIN-SYNDROME@tbinet.org
Disable Receipt of Mail Send e-mail: listserv@home.tbinet.org with text: SET EINSTEIN-SYNDROME NOMAIL
Re-enable Receipt of Mail Send e-mail: listserv@home.tbinet.org with text: SET EINSTEIN-SYNDROME MAIL
Digest Send e-mail: listserv@home.tbinet.org with text: SET EINSTEIN-SYNDROME DIGEST
No Digest Send e-mail: listserv@home.tbinet.org with text: SET EINSTEIN-SYNDROME NODIGEST
Archives http://listserv.tbinet.org/archives/einstein-syndrome.html
Join or leave the list (or change settings): http://listserv.tbinet.org/scripts/wa-tbinet.exe?SUBED1=einstein-syndrome&A=1
URL http://www.tbinet.org/einstein-syndrome/

JewishWithDS
Description A list for anyone Jewish and interested in anything related to Down syndrome!
Owner Sara@DSyndrome.com
Subscribe Send e-mail: JewishWithDS-subscribe@yahoogroups.com
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GH4DS
Description This is a group of parents devoted to the treatment of our children with Down syndrome. The treatment that is currently being discussed is the use of growth hormone, however, we are committed to finding and implementing new treatments as they become available.
Owner GH4DS-owner@yahoogroups.com
Subscribe Send e-mail: GH4DS-subscribe@yahoogroups.com
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Homeschooling Kids with Down Syndrome
Description This group is for parents who felt that home was the best place to educate your child with Down syndrome. We are here to discuss creative ways of teaching our special kids.
Owner Belinda
Subscribe Send e-mail: HKDS-subscribe@yahoogroups.com
Post Send e-mail: HKDS@yahoogroups.com
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URL http://groups.yahoo.com/group/HKDS/

Homeschooling and Down Syndrome
Description I hope to find more and more families who are homeschooling or want to homeschool their child with Down syndrome. Help others know that this is an alternative!
Owner Jennifer Griffith
Subscribe Send e-mail: homeschoolinganddownsyndrome-subscribe@yahoogroups.com
Post Send e-mail: homeschoolinganddownsyndrome@yahoogroups.com
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URL http://health.groups.yahoo.com/group/homeschoolinganddownsyndrome/

Homeschoolparents-christian_DSchildren
Description We are a group of parents of children with Down syndrome who homeschool their children and are raising up our children for the glory of God. We share ideas, prayer requests, pictures, etc.
Owner Dusty Copeland
Subscribe Send e-mail: Homeschoolparents-christian_DSchildren-subscribe@yahoogroups.com
Post Send e-mail: Homeschoolparents-christian_DSchildren@yahoogroups.com
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URL http://groups.yahoo.com/group/Homeschoolparents-christian_DSchildren/

MormonDSMommies
Description A place for Mormon Mommies of children with Down syndrome. We have a unique perspective - let's share it.
Owner MormonDSMommies-owner@yahoogroups.com
Subscribe Send e-mail: MormonDSMommies-subscribe@yahoogroups.com
Post Send e-mail: MormonDSMommies@yahoogroups.com
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MosaicDS
Description A support list for parents whose babies/children/adult children have been diagnosed with Mosaic Down syndrome.
Owner njboxers@earthlink.net
Subscribe Send e-mail: MosaicDS-subscribe@yahoogroups.com
Post Send e-mail: MosaicDS@yahoogroups.com
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URL http://www.mosaicdownsyndrome.com

Multiples-DS
Owner Multiples-DS-owner@yahoogroups.com
Subscribe Send e-mail: Multiples-DS-subscribe@yahoogroups.com
Post Send e-mail: Multiples-DS@yahoogroups.com
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URL http://groups.yahoo.com/group/Multiples-DS/

SingleDSparents
Description If you are single and raising a child with Down syndrome - this is the place! We have all the usual single parent stuff, plus the added weight of caring for our special children.
Owner SingleDSparents-owner@yahoogroups.com
Subscribe Send e-mail: SingleDSparents-subscribe@yahoogroups.com
Post Send e-mail: SingleDSparents@yahoogroups.com
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URL http://groups.yahoo.com/group/SingleDSparents/

UPSNDOWNS
Owners C1ndysue1@aol.com
Moderators b4alltoday@aol.com, MaryGreen3@aol.com, Timbo@natca.net, tberger@inetw.net and zachary9@ptdprolog.net
Description We are a supportive group and have been in existence since 1995. Our list is unique in that we focus on the family and not just the family member with Down syndrome. Our group holds get togethers, the largest being held the third Saturday in June in Keyser, WV. We have a variety of chats, including a sibling chat held on Friday evenings and three chats on AOL.
Subscribe Send e-mail: UpsNDowns-subscribe@yahoogroups.com
Post Send e-mail: UpsNDowns@yahoogroups.com
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URL http://health.groups.yahoo.com/group/UpsNDowns/
URL http://upsndowns.org/

UpWithDowns
Description This mailing list is for parents or relatives of children with Down syndrome and a place to share the "ups" and the "downs" with other parents..
Owner bethkemp1@hotmail.com
Subscribe Send e-mail: UpWithDowns-subscribe@yahoogroups.com
Post Send e-mail: UpWithDowns@yahoogroups.com
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URL http://groups.yahoo.com/group/UpWithDowns/

Speech/Language Web Sites
Comprehensive Speech and Language Intervention for School-Aged Children with Down Syndrome
DownsEd Ltd./Sarah Duffen Centre
Literacy Web Sites
Love and Learning: Teaching Reading and Language
Special Reads for Special Needs
Medical Guidelines
Caring for Patients with Down Syndrome (Trisomy 21) in the Emergency Department, American College of Emergency Physicians, Pediatric Emergency Medicine Newsletter, Dec 2002
Down Syndrome Growth Charts by Greg Richards
Health Care Guidelines for Individuals with Down Syndrome: 1999 Revision, Down Syndrome Quarterly, Sep 1999 4(3):1-16
Health Care Management of Adults with Down Syndrome Am Fam Physician Sep 2001 15;64(6):1031-8, 1039-40
Health Supervision for Children With Down Syndrome Pediatrics Feb 2001 107(2):442-449
Health Watch, NDSC
JAMA Patient Page, JAMA Feb 28, 2001 285(8):1112
Primary Care of Infants and Young Children with Down Syndrome American Family Physician Jan 15, 1999
The Clinical Assessment and Management of Children, Young People and Adults with Down Syndrome, New Zealand Ministry of Health Oct 2001
Message Boards
Baby Center Down Syndrome Bulletin Board
Canadian Down Syndrome Society Networking Message Board
Down Syndrome/Trisomy 21 Friends Message Board
HealthBoard.com Down Syndrome Message Board
Families Dealing With Down Syndrome
National Association For Down Syndrome Discussion Board
Parent Center Down Syndrome Board
iVillage/ParentsPlace.com Down Syndrome/Trisomy 21 Bulletin Board
Uno Mas! Down Syndrome Online

 

 

 

 

 
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